Our weekend at the Real Help Now Conference

My husband and I this past weekend attended the Real Help Now Conference that is put on by TACA. Even though I consider myself pretty knowledgeable (despite being pretty new to the diagnosis), I learned a lot of things. It was a lot to take in, but it helped us know we are on the right track. Also, go to the TACA website. I linked it above. They are a FANTASTIC resource. And, while you're at it - request a mentor. I have a great mentor, and in a year or so, I am going to be applying to be a mentor. Give TACA some love, because they really, really are awesome.

Plus, I got a chance to see a number of doctors speak that are pretty much rock stars in the autism world. That was pretty awesome.

After watching many presentations the first thing was that we need to see Dr. Frye, because he is the be-all end-all of pediatric neurologists - and not just that, but ones that study autism. So, in short, I have never really put to rest the idea of seizures in Buzzy, because I don't feel he got the proper care. The EEG wasn't long enough. The doctor might have brushed off anything abnormal. We don't know whether he has cerebral folate antibodies. Still so many questions, and I want the answers. I can't stop listening to my gut and my intuition, so for my peace of mind, this is something we need to do.

There is a 15 month wait list.

I plan on getting in before 6 months are up. It's just a personal goal of mine - and that was something they talked about at the conference - how to get one of those cancellations and get seen sooner.

I also found that we are definitely seeing the right "local" doctor. We are on the right path. And, with enough time, we will heal Buzzy.

I think even more important than what I learned, is what my husband was able to learn. He has mostly learned everything through me - what I read and then what I told him. This was a good way for him to see how everything fit together and that maybe his wife wasn't crazy for wanting to do all of this stuff and wanting to see these doctors.

Clearly, the proof is in how Buzzy is doing, and he is doing a lot better. But, it was still nice to hear these doctors present, and what they're presenting are essentially the things we're doing.